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Rett Syndrome - Rare Disease #4560377
10/31/17 04:32 PM
10/31/17 04:32 PM
Joined: Apr 2017
Posts: 431
Utah, USA
28oz Offline OP
28oz  Offline OP
Joined: Apr 2017
Posts: 431
Utah, USA
My wife's niece has Rett Syndrome. It's rare, and almost exclusively affects girls. This disease will most likely take her life. Since the disease is rare, it is also not very well known, nor well funded. I just wanted to get the word out as much as possible in my own tiny sphere of influence. Please take a minute and check out the links. Thanks.

www.reverserett.org


Re: Rett Syndrome - Rare Disease [Re: 28oz] #4560393
10/31/17 04:50 PM
10/31/17 04:50 PM
Joined: Oct 2010
Posts: 8,820
Virginia Beach
Astro14 Offline
Astro14  Offline
Joined: Oct 2010
Posts: 8,820
Virginia Beach
I am so sorry. Is Emmaline your niece?


32 Packard 15W40
02 Volvo V70 T5 0W40 M1
02 Volvo V70 XC 0W40 Edge
05 MB S600 0W40 M1
16 Tundra 1794 5W30 Pennzoil Ultra
Re: Rett Syndrome - Rare Disease [Re: Astro14] #4560399
10/31/17 04:57 PM
10/31/17 04:57 PM
Joined: Apr 2017
Posts: 431
Utah, USA
28oz Offline OP
28oz  Offline OP
Joined: Apr 2017
Posts: 431
Utah, USA
Originally Posted By: Astro14
I am so sorry. Is Emmaline your niece?


My wife's niece. Thanks.


-----------------
1990 Nissan 300zx - Castrol Edge Euro 0W-40
2004 Nissan Quest - Pennzoil Platinum Euro 0W-40
2003 Ford Excursion 7.3 PSD - Mobil 1 TDT 5w-40
Re: Rett Syndrome - Rare Disease [Re: 28oz] #4560624
10/31/17 08:10 PM
10/31/17 08:10 PM
Joined: Aug 2016
Posts: 271
Alberta
carviewsonic Offline
carviewsonic  Offline
Joined: Aug 2016
Posts: 271
Alberta
Our very best wishes for Emmaline and her family, from our family. Tough stuff.


'18 Impala
'03 Park Avenue
'05 Park Avenue
'07 Honda Accord
'09 VStar 1300
Re: Rett Syndrome - Rare Disease [Re: 28oz] #4560940
11/01/17 07:38 AM
11/01/17 07:38 AM
Joined: Oct 2010
Posts: 8,820
Virginia Beach
Astro14 Offline
Astro14  Offline
Joined: Oct 2010
Posts: 8,820
Virginia Beach
Donation sent.


32 Packard 15W40
02 Volvo V70 T5 0W40 M1
02 Volvo V70 XC 0W40 Edge
05 MB S600 0W40 M1
16 Tundra 1794 5W30 Pennzoil Ultra
Re: Rett Syndrome - Rare Disease [Re: carviewsonic] #4561081
11/01/17 10:13 AM
11/01/17 10:13 AM
Joined: Apr 2017
Posts: 431
Utah, USA
28oz Offline OP
28oz  Offline OP
Joined: Apr 2017
Posts: 431
Utah, USA
Originally Posted By: carviewsonic
Our very best wishes for Emmaline and her family, from our family. Tough stuff.


Thank you! That means a lot!


-----------------
1990 Nissan 300zx - Castrol Edge Euro 0W-40
2004 Nissan Quest - Pennzoil Platinum Euro 0W-40
2003 Ford Excursion 7.3 PSD - Mobil 1 TDT 5w-40
Re: Rett Syndrome - Rare Disease [Re: Astro14] #4561082
11/01/17 10:13 AM
11/01/17 10:13 AM
Joined: Apr 2017
Posts: 431
Utah, USA
28oz Offline OP
28oz  Offline OP
Joined: Apr 2017
Posts: 431
Utah, USA
Originally Posted By: Astro14
Donation sent.


Astro14, you are so kind. Thank you so much for your generosity!


-----------------
1990 Nissan 300zx - Castrol Edge Euro 0W-40
2004 Nissan Quest - Pennzoil Platinum Euro 0W-40
2003 Ford Excursion 7.3 PSD - Mobil 1 TDT 5w-40

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